Hello, my name is Jacob! I am a person living with CHARGE syndrome. To some that may seem different, but I am just like everyone else, I just do things my own way. I am deaf-blind and use total communication to communicate. That means I use combination american sign language, oral, visual and written aids. I like to engage and volunteer in my community, give gifts, shop, do crafts and take photos.

This website has been designed as a tool. The design is catered around the needs of Jacob; that is why you see larger icons and high contrast. Each deaf-blind individual is different so please keep this in mind.

Our goal through this website, social media, and general advocacy is to raise awareness and educate the community about CHARGE Syndrome and Deaf-Blindness. Through this, we hope people will embrace individuals with disabilities and support their needs.