The CHARGE Syndrome Foundation just sent out their summer newsletter. This is a great resource to keep up with what is going on in the world of CHARGE. Do you want them sent to your email? You can sign up for the mailing list by clicking here!
In this addition to CHARGE Accounts you will find information about the 2019 Conference, EWRAP Awards, Fellows Reflections, Information about College and Beyond, Fundraising and more.
CHARGE Syndrome Foundation is celebrating their 25th Anniversary this year! In the highlight of the first CHARGE Conference, Meg Hefner recalls that 250 people attended- including 46 individuals with CHARGE and 40 siblings from across the United States and from other countries. She also states that “by bringing together both families and professionals, we hoped the conference would be especially meaningful for everyone. From a personal point of view, my highlight (after a year of planning) was at the opening mixer Thursday evening, when one of my “local moms” came up to me with tears in her eyes and said, “Meg, it is already worth it.””
We are so happy for this conference 25 years ago and are looking forward the the next one!
Read the whole CHARGE Account by following this link.