The CHARGE Foundation has released their spring issue of CHARGE accounts! We look forward to this new article to learn what is new in CHARGE Syndrome.
This Issues talks about things such as Facebook, gives some FAQs, introduces new board directors, shares award and honor recipients, shares ways to plan for the future, and of course much more!
We are especially interested in the section on facebook! We ourselves love having the CHARGE syndrome groups as resources. While, they aren’t there for medical opinions- it is nice to have other parents and CHARGERS who have dealt with similar experiences. Such a great tool to make like-minded community across such a big world.
The article lists out the CHARGE Syndrome that you can join for support.
- JaconinCHARGE (141 members) – of course we want you to join OUR group! Here we share daly life of Jacob, share resources and try to develop community engagement opportunities.
- CHARGE Syndrome Group (6,471 members) – General CHARGE Syndrome
- Adult CHARGE group (112 members) – Navigating work vs not working related to disability and medical coverage